About Luxturna

Luxturna is a gene therapy.

The generic name of Luxturna is “voretigene neparvovec-rzyl”

Luxturna is a treatment for people who have Leber congenital amaurosis (LCA) or retinitis pigmentosa (RP) caused by mutations in both copies of the RPE65 gene. Luxturna provides a working copy of the RPE65 gene to act in order to restore the visual cycle. This step is essential for the photoreceptor cells in the retina to sense light and send a message to the brain. Evidence from clinical trials shows that this treatment can safely improve vision, particularly night vision and the ability to function independently.

Our medical specialists are telling us there are 42 Canadians identified right now to be treated with Luxturna.  It’s a one-time treatment that can improve sight (especially night vision) and the ability to function independently.

EVERY DAY we lose photoreceptors. However, if your RPE65 gene is not functioning properly and typically over the age of 15, these kids loose over 10,000 photoreceptors/day. And it’s irreversible.

Time = Sight! 

Here are news reports on Luxturna coming to Canada

CTV National News

Dr Elise Héon speaks about Luxturna

Global TV News

We should not let a bureaucratic process mean people go blind needlessly.